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Support Clan Gillespie @ Step Forward to Cure TSC 2016

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To make a donation online now, please visit our group page

On June 04, 2016, 10am @ Libertyville High School (708 West Park Avenue, Libertyville, IL 60048), Join Clan Gillespie and other individuals and families affected by TSC as we join together to increase awareness of tuberous sclerosis complex (TSC) and share their stories of hope. Whether you are close to the disease or simply looking for an inspiring charity event, LIDS Step Forward to Cure TSC walkathon is a great way to experience the power of standing together and giving back to the community.

Join the excitement! You can register to walk with us, be an “angel” walker, or make donations securely on our group page. There is lunch provided, kids’ activities, TSC resources and much, much more! This year’s walk promotes super heroes across the country. Individuals, families, friends and supporters are all encouraged to participate dressed like their favorite hero, be it a cartoon character, doctor, teacher, sibling, parent, etc.- just come as you are! We urge you to become a Super Hero of the TS Alliance.

Tuberous sclerosis complex (TSC) is a rare genetic disorder that causes tumors to form in vital organs; TSC is also the leading genetic cause of both autism and epilepsy. To learn more about tuberous sclerosis complex (TSC) click here. With your help, we can be heroes to the 50,000 Americans with TSC as well as their caregivers and loved ones.

We choose to fight, not only for Ethan, Elsie, Naomi, and Esther, but for the 1 in 6,000 kids born with TSC every day…50,000 in the U.S…over 1 million worldwide.  Tuberous sclerosis complex, or TSC, is more common than Lou Gehrig’s disease and Cystic Fibrosis. There is no cure. Yet!

Ours is a story of determination. Our stunningly small group of parents and adults with TSC, through sheer will and passion, have brought this disease to the brink of a breakthrough.  We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure!  Please help support our family who has refused to give up and refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and other medical complications.

We’re making HUGE strides in finding a cure for TSC.  Here’s what we know now we didn’t know just two short years ago:  TSC is what’s called a “linchpin” disease. This simply means the genetic pathway involved in TSC is the same pathway affecting more than a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity.  We’ve got a long way to go, but recent clinical trials of a new drug actually show the symptoms of autism disappearing in mice. We’re in a race against time and our resources are strained beyond their limits!

Many, many thanks!

Christopher

To make a donation online now, please visit our group page.

You may send a donation instead. To ensure proper acknowledgement, please mail all donations as follows:

  • Checks. Check(s) should include: team name and/or walker name (either written on the memo section of the check or on a donation tracking form). To avoid stale-dated checks please mail payments within ten days of receipt. Checks that are not marked with a participant’s name will be credited as a team donation. Cash is prohibited so please obtain a money order or check.

The TS Alliance will properly receipt donors for gifts over $250 as defined by IRS regulations.

Please mail to:
Christopher Gillespie
8307 Sheffield Avenue
DyerIN 46311-2752
United States

Make checks payable to Tuberous Sclerosis Alliance or TS Alliance.

Easter greetings from our friends of the SELC

Peace to you dear Brothers and Sisters,

We are glad to greet you with Easter Greetings: Khristos voskres! Christ is risen!

May we bring to your attention the words of greetings from the Easter Message 2016 of our Bishop Vsevolod Lytkin that will be read in all parishes of SELC during the Easter liturgy:

The first Easter command written in today’s Gospel reading, is very short, there are only two words: “Go, tell”[Mk 16:7]. Nobody had been aware yet of the resurrection of Jesus Christ at the time, but the whole world had to know this.

In our time of apathy, separation, and indifference this very appeal goes forth especially loud and clear: go and tell, tell not only by words, but also by works and Christian love. Following Christ has taught us that love always presupposes sacrifices. Properly speaking, love is a sacrifice. The Son of God has paid His life out of His love to us.

The Lords wills for us to learn from Him how to sacrifice what we have and even what we are for salvation of people, so that those who are still in darkness would recognize risen Christ, His Church and her gifts: Baptism and Eucharist, joy of salvation, and that reality that there is no more death for Christians but instead there is resurrection.

Happy Easter, my beloved parishioners! Christ is risen!

And we wish you blessed Easter!

“Faith and hope”,
Siberia, Center of the world :)
Please see attached photos from the Easter liturgy in Novosibirsk

The paschal mystery is at the center of Christian faith

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I want to suggest that Christians may best reclaim Christmas, indirectly, by first reclaiming Easter. Ours is an ironic faith, one that trains its adherents to see strength in weakness. The irony at hand could be that a secularizing culture has shown us something important by devaluing Christmas. In a way, Christians have valued Christmas too much and in the wrong way. I defer again to Hoffman, who writes,

‘Historians tell us that Christmas was not always the cultural fulcrum that balances Christian life. There was a time when Christians knew that the paschal mystery of death and resurrection was the center of Christian faith. It was Easter that mattered, not Christmas. Only in the consumer-conscious nineteenth century did Christmas overtake Easter, becoming the centerpiece of popular piety. Madison avenue marketed the change, and then colluded with the entertainment industry to boost Christmas to its current calendrial prominence.’

The Bible, of course, knows nothing of the designated holidays we call Easter or Christmas. But each holiday celebrates particular events, and there can be no doubt which set of events receives the most scriptural emphasis.

Rodney Clapp,”Let the Pagans Have the Holiday,” p. 80