To make a donation online now, please visit our group page.
Dear Friends and Family,
We choose to fight, not only for Ethan, Elsie, Naomi, and Esther, but for the 1 in 6,000 kids born with TSC every day…50,000 in the U.S…over 1 million worldwide. Tuberous sclerosis complex, or TSC, is more common than Lou Gehrig’s disease and Cystic Fibrosis. There is no cure. Yet!
Ours is a story of determination. Our stunningly small group of parents and adults with TSC, through sheer will and passion, have brought this disease to the brink of a breakthrough. We are joined in our fight by aunts and uncles, brothers and sisters, grandparents and friends, co-workers and colleagues. We’re asking you to join us in the fight to find a cure! Please help support our family who has refused to give up and refused to take no for an answer, even when faced with the daily challenges of seizures, autism, ADHD, facial disfiguration, anxiety, behavioral problems, and other medical complications.
We’re making HUGE strides in finding a cure for TSC. Here’s what we know now we didn’t know just two short years ago: TSC is what’s called a “linchpin†disease. This simply means the genetic pathway involved in TSC is the same pathway affecting more than a dozen major diseases and disorders, including autism, epilepsy, cancer, and obesity. We’ve got a long way to go, but recent clinical trials of a new drug actually show the symptoms of autism disappearing in mice. We’re in a race against time and our resources are strained beyond their limits!
On 05/30/2015, our family is participating in the Westmont, Illinois Step Forward to Cure TSC walkathon. Please support our fight by joining Clan Gillespie and helping to break the back of this horrific disorder. You can register with us or make donations securely on our group page.
Many, many thanks!
Christopher
- Lean more about our story with TSC.
- Learn how your financial support of TSC research is crucial to a cure.
To make a donation online now, please visit our group page.
To send a donation, mail to:
Christopher Gillespie
8307 Sheffield Avenue
Dyer, IN 46311-2752
United States
Make all checks payable to: Tuberous Sclerosis Alliance